Survey: MS Healthcare Professionals

 

Dear Colleague, thank you for joining the KNOWwMS survey!

As you know, reproductive health is a critical area of concern for women with MS, affecting family planning, pregnancy, breastfeeding, and overall disease management. This survey is part of a project designed to identify a core set of issues related to reproductive health that every woman with MS needs to know, enabling healthcare professionals to provide more informed and consistent guidance across countries and cultures.

This survey is intended for healthcare professionals involved in treating and managing patients with MS. Your input is essential in helping us understand the current state of knowledge, identify gaps, and develop better resources to support women with MS in making informed decisions about their reproductive health.

The survey is completely anonymous, and all data collected will remain confidential and used solely for research purposes. Participation is voluntary, and you may skip questions or exit at any time.

For any inquiries about the survey or the project, please contact cochrane.ms@ausl.bologna.it.
 

Being in this research study is completely voluntary. You can choose not to be in this research study. You can also say yes now and change your mind later.

If you agree to take part in this research, you will be asked to answer questions about MS and family planning, pregnancy, and breastfeeding.

We expect that about 50 participants will take part in this research study.

You can choose not to answer any question you do not wish to answer. You can also choose to stop taking the survey at any time. You must be a healthcare provider and at least 18 years old to participate. If you are not a healthcare provider or younger than 18 years old, please stop now.

The possible risks to you in taking part in this research are:

You might feel uncomfortable with not knowing some of the answers, but please know that we consider any information you share with us important and valuable.

The potential loss of confidentiality of data is a minimal risk as this is an anonymous survey and information is stored in a secure manner in a firewall-protected database.

To protect your identity as a research subject, the research data will never be stored with your name and any information will not be shared outside the research team. In any publication about this research, your name or other private information will not be used.

General info
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Survey MS Healthcare Professionals
1. Do you believe that WwMS usually receive adequate information when it comes to planning a family?
2. Do WwMS express concerns about becoming pregnant because of their diagnosis?
3. Do WwMS express concerns about how pregnancy could affect the course of MS?
4. Do WwMS express concerns about how MS could affect their parental abilities?
5. Do WwMS express concerns about stopping or adjusting their MS medications during pregnancy?
6. Do WwMS express concerns about stopping or adjusting their MS medications while breastfeeding?
7. In your practice, are you able to provide appropriate counselling about reproductive health to WwMS?
8. Do you believe that other specialists beside yours or general practitioners should primarily handle family planning discussions with WwMS?
9. Who usually initiates the conversation about family planning in your practice?
10. Do you provide contraception counselling to WwMS in a fertile age as part of your routine care?
11. Do you rely on national or international guidelines when prescribing DMTs to WwMS who wish to become pregnant?
12. Do you usually collaborate with other professionals involved in reproductive health management of WwMS (e.g. OBGYN, GPs…)?
13. In your practice is there a formal multidisciplinary network for the management of reproductive health in WwMS (e.g. OBGYN, GPs…)?
14. Do you feel like you have access to updated information on management of reproductive health issues in WwMS?
15. What sources do you usually access to inform WwMS about reproductive health?
Open-ended question